The psychosocial burden on spouses of the elderly with stroke, dementia and Parkinson's disease
Identifieur interne : 001553 ( Main/Corpus ); précédent : 001552; suivant : 001554The psychosocial burden on spouses of the elderly with stroke, dementia and Parkinson's disease
Auteurs : Bente Thommessen ; Dag Aarsland ; Anne Braekhus ; Anne Rita Oksengaard ; Knut Engedal ; Knut LaakeSource :
- International Journal of Geriatric Psychiatry [ 0885-6230 ] ; 2002-01.
English descriptors
Abstract
Objective: To characterize the psychosocial burden on spouses living with the elderly suffering from mild dementia, stroke and Parkinson's disease, and to identify patient characteristics associated with it. Materials and methods: Data on patient—spouse couples came from three studies of patients with stroke (36 couples), mild dementia (92 couples) and Parkinson's disease (58 couples). The psychosocial burden was recorded by the 15—item Relatives' Stress Scale (RSS). A factor analysis of this instrument produced a one‐factor solution (CFI = 0.98) consisting of eight items with good face validity and acceptable reliability within each diagnostic group (Cronbach's alpha range 0.66–0.69). Covariates of this factor were identified using structural equation modeling (SEM) by regression on patient's age, gender, cognitive function (MMSE), activities of daily living (ADL) and depressive symptoms (MADRS). Results: Disorganization of household routines, difficulties with going away for holidays, restrictions on social life, and the disturbances of sleep were the most frequently reported problems in all three groups. According to the mean sumscore on the RSS, the perceived psychosocial burden was similar across the diagnostic groups. In the final SEM model, a lower cognitive function of the patient was associated with a higher psychosocial burden on the spouses of patients with stroke (β = −1.3, p = 0.01) and Parkinson's disease (β = −0.89, p < 0.01), while in the dementia group, only an insignificant trend was demonstrated. In the dementia group, a significantly higher burden was identified on female spouses (β = −0.56, p = 0.04). A heavier burden of care was also associated with depressive symptoms in the patients with Parkinson's disease. In neither group did the final model disclose any effect of ADL function on the spouse's psychosocial burden. Conclusion: Spouses caring for patients with dementia, stroke and Parkinson's disease perceive a similar type and level of psychosocial burden, independent of the disease. The cognitive functioning of the patient is a particularly important factor in this, especially when caring for patients with stroke or Parkinson's disease. Copyright © 2002 John Wiley & Sons, Ltd.
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DOI: 10.1002/gps.524
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<record><TEI wicri:istexFullTextTei="biblStruct"><teiHeader><fileDesc><titleStmt><title xml:lang="en">The psychosocial burden on spouses of the elderly with stroke, dementia and Parkinson's disease</title><author><name sortKey="Thommessen, Bente" sort="Thommessen, Bente" uniqKey="Thommessen B" first="Bente" last="Thommessen">Bente Thommessen</name><affiliation><mods:affiliation>Department of Geriatric Medicine, Ullevaal Hospital, Oslo, Norway</mods:affiliation></affiliation></author><author><name sortKey="Aarsland, Dag" sort="Aarsland, Dag" uniqKey="Aarsland D" first="Dag" last="Aarsland">Dag Aarsland</name><affiliation><mods:affiliation>Section of Geriatric Psychiatry, Rogaland Psychiatric Hospital, Stavanger, Norway</mods:affiliation></affiliation></author><author><name sortKey="Braekhus, Anne" sort="Braekhus, Anne" uniqKey="Braekhus A" first="Anne" last="Braekhus">Anne Braekhus</name><affiliation><mods:affiliation>The Norwegian Centre for Dementia Research</mods:affiliation></affiliation></author><author><name sortKey="Oksengaard, Anne Rita" sort="Oksengaard, Anne Rita" uniqKey="Oksengaard A" first="Anne Rita" last="Oksengaard">Anne Rita Oksengaard</name><affiliation><mods:affiliation>Department of Geriatric Medicine, Ullevaal Hospital, Oslo, Norway</mods:affiliation></affiliation></author><author><name sortKey="Engedal, Knut" sort="Engedal, Knut" uniqKey="Engedal K" first="Knut" last="Engedal">Knut Engedal</name><affiliation><mods:affiliation>The Norwegian Centre for Dementia Research</mods:affiliation></affiliation></author><author><name sortKey="Laake, Knut" sort="Laake, Knut" uniqKey="Laake K" first="Knut" last="Laake">Knut Laake</name><affiliation><mods:affiliation>Department of Geriatric Medicine, Ullevaal Hospital, Oslo, Norway</mods:affiliation></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">ISTEX</idno><idno type="RBID">ISTEX:8407B908DC6A0BCC4A02698E87626388238E5A8E</idno><date when="2002" year="2002">2002</date><idno type="doi">10.1002/gps.524</idno><idno type="url">https://api.istex.fr/document/8407B908DC6A0BCC4A02698E87626388238E5A8E/fulltext/pdf</idno><idno type="wicri:Area/Main/Corpus">001553</idno></publicationStmt><sourceDesc><biblStruct><analytic><title level="a" type="main" xml:lang="en">The psychosocial burden on spouses of the elderly with stroke, dementia and Parkinson's disease</title><author><name sortKey="Thommessen, Bente" sort="Thommessen, Bente" uniqKey="Thommessen B" first="Bente" last="Thommessen">Bente Thommessen</name><affiliation><mods:affiliation>Department of Geriatric Medicine, Ullevaal Hospital, Oslo, Norway</mods:affiliation></affiliation></author><author><name sortKey="Aarsland, Dag" sort="Aarsland, Dag" uniqKey="Aarsland D" first="Dag" last="Aarsland">Dag Aarsland</name><affiliation><mods:affiliation>Section of Geriatric Psychiatry, Rogaland Psychiatric Hospital, Stavanger, Norway</mods:affiliation></affiliation></author><author><name sortKey="Braekhus, Anne" sort="Braekhus, Anne" uniqKey="Braekhus A" first="Anne" last="Braekhus">Anne Braekhus</name><affiliation><mods:affiliation>The Norwegian Centre for Dementia Research</mods:affiliation></affiliation></author><author><name sortKey="Oksengaard, Anne Rita" sort="Oksengaard, Anne Rita" uniqKey="Oksengaard A" first="Anne Rita" last="Oksengaard">Anne Rita Oksengaard</name><affiliation><mods:affiliation>Department of Geriatric Medicine, Ullevaal Hospital, Oslo, Norway</mods:affiliation></affiliation></author><author><name sortKey="Engedal, Knut" sort="Engedal, Knut" uniqKey="Engedal K" first="Knut" last="Engedal">Knut Engedal</name><affiliation><mods:affiliation>The Norwegian Centre for Dementia Research</mods:affiliation></affiliation></author><author><name sortKey="Laake, Knut" sort="Laake, Knut" uniqKey="Laake K" first="Knut" last="Laake">Knut Laake</name><affiliation><mods:affiliation>Department of Geriatric Medicine, Ullevaal Hospital, Oslo, Norway</mods:affiliation></affiliation></author></analytic><monogr></monogr><series><title level="j">International Journal of Geriatric Psychiatry</title><title level="j" type="abbrev">Int. J. Geriat. Psychiatry</title><idno type="ISSN">0885-6230</idno><idno type="eISSN">1099-1166</idno><imprint><publisher>John Wiley & Sons, Ltd.</publisher><pubPlace>Chichester, UK</pubPlace><date type="published" when="2002-01">2002-01</date><biblScope unit="volume">17</biblScope><biblScope unit="issue">1</biblScope><biblScope unit="page" from="78">78</biblScope><biblScope unit="page" to="84">84</biblScope></imprint><idno type="ISSN">0885-6230</idno></series><idno type="istex">8407B908DC6A0BCC4A02698E87626388238E5A8E</idno><idno type="DOI">10.1002/gps.524</idno><idno type="ArticleID">GPS524</idno></biblStruct></sourceDesc><seriesStmt><idno type="ISSN">0885-6230</idno></seriesStmt></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Parkinson's disease</term><term>carer burden</term><term>cognitive impairment</term><term>elderly</term><term>mild dementia</term><term>stroke</term></keywords></textClass><langUsage><language ident="en">en</language></langUsage></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">Objective: To characterize the psychosocial burden on spouses living with the elderly suffering from mild dementia, stroke and Parkinson's disease, and to identify patient characteristics associated with it. Materials and methods: Data on patient—spouse couples came from three studies of patients with stroke (36 couples), mild dementia (92 couples) and Parkinson's disease (58 couples). The psychosocial burden was recorded by the 15—item Relatives' Stress Scale (RSS). A factor analysis of this instrument produced a one‐factor solution (CFI = 0.98) consisting of eight items with good face validity and acceptable reliability within each diagnostic group (Cronbach's alpha range 0.66–0.69). Covariates of this factor were identified using structural equation modeling (SEM) by regression on patient's age, gender, cognitive function (MMSE), activities of daily living (ADL) and depressive symptoms (MADRS). Results: Disorganization of household routines, difficulties with going away for holidays, restrictions on social life, and the disturbances of sleep were the most frequently reported problems in all three groups. According to the mean sumscore on the RSS, the perceived psychosocial burden was similar across the diagnostic groups. In the final SEM model, a lower cognitive function of the patient was associated with a higher psychosocial burden on the spouses of patients with stroke (β = −1.3, p = 0.01) and Parkinson's disease (β = −0.89, p < 0.01), while in the dementia group, only an insignificant trend was demonstrated. In the dementia group, a significantly higher burden was identified on female spouses (β = −0.56, p = 0.04). A heavier burden of care was also associated with depressive symptoms in the patients with Parkinson's disease. In neither group did the final model disclose any effect of ADL function on the spouse's psychosocial burden. Conclusion: Spouses caring for patients with dementia, stroke and Parkinson's disease perceive a similar type and level of psychosocial burden, independent of the disease. The cognitive functioning of the patient is a particularly important factor in this, especially when caring for patients with stroke or Parkinson's disease. Copyright © 2002 John Wiley & Sons, Ltd.</div></front></TEI><istex><corpusName>wiley</corpusName><author><json:item><name>Bente Thommessen</name><affiliations><json:string>Department of Geriatric Medicine, Ullevaal Hospital, Oslo, Norway</json:string></affiliations></json:item><json:item><name>Dag Aarsland</name><affiliations><json:string>Section of Geriatric Psychiatry, Rogaland Psychiatric Hospital, Stavanger, Norway</json:string></affiliations></json:item><json:item><name>Anne Braekhus</name><affiliations><json:string>The Norwegian Centre for Dementia Research</json:string></affiliations></json:item><json:item><name>Anne Rita Oksengaard</name><affiliations><json:string>Department of Geriatric Medicine, Ullevaal Hospital, Oslo, Norway</json:string></affiliations></json:item><json:item><name>Knut Engedal</name><affiliations><json:string>The Norwegian Centre for Dementia Research</json:string></affiliations></json:item><json:item><name>Knut Laake</name><affiliations><json:string>Department of Geriatric Medicine, Ullevaal Hospital, Oslo, Norway</json:string></affiliations></json:item></author><subject><json:item><lang><json:string>eng</json:string></lang><value>carer burden</value></json:item><json:item><lang><json:string>eng</json:string></lang><value>cognitive impairment</value></json:item><json:item><lang><json:string>eng</json:string></lang><value>elderly</value></json:item><json:item><lang><json:string>eng</json:string></lang><value>stroke</value></json:item><json:item><lang><json:string>eng</json:string></lang><value>mild dementia</value></json:item><json:item><lang><json:string>eng</json:string></lang><value>Parkinson's disease</value></json:item></subject><articleId><json:string>GPS524</json:string></articleId><language><json:string>eng</json:string></language><abstract>Objective: To characterize the psychosocial burden on spouses living with the elderly suffering from mild dementia, stroke and Parkinson's disease, and to identify patient characteristics associated with it. Materials and methods: Data on patient—spouse couples came from three studies of patients with stroke (36 couples), mild dementia (92 couples) and Parkinson's disease (58 couples). The psychosocial burden was recorded by the 15—item Relatives' Stress Scale (RSS). A factor analysis of this instrument produced a one‐factor solution (CFI = 0.98) consisting of eight items with good face validity and acceptable reliability within each diagnostic group (Cronbach's alpha range 0.66–0.69). Covariates of this factor were identified using structural equation modeling (SEM) by regression on patient's age, gender, cognitive function (MMSE), activities of daily living (ADL) and depressive symptoms (MADRS). Results: Disorganization of household routines, difficulties with going away for holidays, restrictions on social life, and the disturbances of sleep were the most frequently reported problems in all three groups. According to the mean sumscore on the RSS, the perceived psychosocial burden was similar across the diagnostic groups. In the final SEM model, a lower cognitive function of the patient was associated with a higher psychosocial burden on the spouses of patients with stroke (β = −1.3, p = 0.01) and Parkinson's disease (β = −0.89, p > 0.01), while in the dementia group, only an insignificant trend was demonstrated. In the dementia group, a significantly higher burden was identified on female spouses (β = −0.56, p = 0.04). A heavier burden of care was also associated with depressive symptoms in the patients with Parkinson's disease. In neither group did the final model disclose any effect of ADL function on the spouse's psychosocial burden. Conclusion: Spouses caring for patients with dementia, stroke and Parkinson's disease perceive a similar type and level of psychosocial burden, independent of the disease. The cognitive functioning of the patient is a particularly important factor in this, especially when caring for patients with stroke or Parkinson's disease. Copyright © 2002 John Wiley & Sons, Ltd.</abstract><qualityIndicators><score>7.272</score><pdfVersion>1.3</pdfVersion><pdfPageSize>567 x 737 pts</pdfPageSize><refBibsNative>true</refBibsNative><keywordCount>6</keywordCount><abstractCharCount>2241</abstractCharCount><pdfWordCount>4272</pdfWordCount><pdfCharCount>26813</pdfCharCount><pdfPageCount>7</pdfPageCount><abstractWordCount>322</abstractWordCount></qualityIndicators><title>The psychosocial burden on spouses of the elderly with stroke, dementia and Parkinson's disease</title><genre><json:string>article</json:string></genre><host><volume>17</volume><publisherId><json:string>GPS</json:string></publisherId><pages><total>7</total><last>84</last><first>78</first></pages><issn><json:string>0885-6230</json:string></issn><issue>1</issue><subject><json:item><value>Research Article</value></json:item></subject><genre><json:string>Journal</json:string></genre><language><json:string>unknown</json:string></language><eissn><json:string>1099-1166</json:string></eissn><title>International Journal of Geriatric Psychiatry</title><doi><json:string>10.1002/(ISSN)1099-1166</json:string></doi></host><publicationDate>2002</publicationDate><copyrightDate>2002</copyrightDate><doi><json:string>10.1002/gps.524</json:string></doi><id>8407B908DC6A0BCC4A02698E87626388238E5A8E</id><fulltext><json:item><original>true</original><mimetype>application/pdf</mimetype><extension>pdf</extension><uri>https://api.istex.fr/document/8407B908DC6A0BCC4A02698E87626388238E5A8E/fulltext/pdf</uri></json:item><json:item><original>false</original><mimetype>application/zip</mimetype><extension>zip</extension><uri>https://api.istex.fr/document/8407B908DC6A0BCC4A02698E87626388238E5A8E/fulltext/zip</uri></json:item><istex:fulltextTEI uri="https://api.istex.fr/document/8407B908DC6A0BCC4A02698E87626388238E5A8E/fulltext/tei"><teiHeader><fileDesc><titleStmt><title level="a" type="main" xml:lang="en">The psychosocial burden on spouses of the elderly with stroke, dementia and Parkinson's disease</title></titleStmt><publicationStmt><authority>ISTEX</authority><publisher>John Wiley & Sons, Ltd.</publisher><pubPlace>Chichester, UK</pubPlace><availability><p>WILEY</p></availability><date>2002</date></publicationStmt><sourceDesc><biblStruct type="inbook"><analytic><title level="a" type="main" xml:lang="en">The psychosocial burden on spouses of the elderly with stroke, dementia and Parkinson's disease</title><author><persName><forename type="first">Bente</forename><surname>Thommessen</surname></persName><note type="correspondence"><p>Correspondence: Department of Geriatric Medicine, Ullevaal Hospital, 0407 Oslo, Norway.</p></note><affiliation>Department of Geriatric Medicine, Ullevaal Hospital, Oslo, Norway</affiliation></author><author><persName><forename type="first">Dag</forename><surname>Aarsland</surname></persName><affiliation>Section of Geriatric Psychiatry, Rogaland Psychiatric Hospital, Stavanger, Norway</affiliation></author><author><persName><forename type="first">Anne</forename><surname>Braekhus</surname></persName><affiliation>The Norwegian Centre for Dementia Research</affiliation></author><author><persName><forename type="first">Anne Rita</forename><surname>Oksengaard</surname></persName><affiliation>Department of Geriatric Medicine, Ullevaal Hospital, Oslo, Norway</affiliation></author><author><persName><forename type="first">Knut</forename><surname>Engedal</surname></persName><affiliation>The Norwegian Centre for Dementia Research</affiliation></author><author><persName><forename type="first">Knut</forename><surname>Laake</surname></persName><affiliation>Department of Geriatric Medicine, Ullevaal Hospital, Oslo, Norway</affiliation></author></analytic><monogr><title level="j">International Journal of Geriatric Psychiatry</title><title level="j" type="abbrev">Int. J. Geriat. Psychiatry</title><idno type="pISSN">0885-6230</idno><idno type="eISSN">1099-1166</idno><idno type="DOI">10.1002/(ISSN)1099-1166</idno><imprint><publisher>John Wiley & Sons, Ltd.</publisher><pubPlace>Chichester, UK</pubPlace><date type="published" when="2002-01"></date><biblScope unit="volume">17</biblScope><biblScope unit="issue">1</biblScope><biblScope unit="page" from="78">78</biblScope><biblScope unit="page" to="84">84</biblScope></imprint></monogr><idno type="istex">8407B908DC6A0BCC4A02698E87626388238E5A8E</idno><idno type="DOI">10.1002/gps.524</idno><idno type="ArticleID">GPS524</idno></biblStruct></sourceDesc></fileDesc><profileDesc><creation><date>2002</date></creation><langUsage><language ident="en">en</language></langUsage><abstract xml:lang="en"><p>Objective: To characterize the psychosocial burden on spouses living with the elderly suffering from mild dementia, stroke and Parkinson's disease, and to identify patient characteristics associated with it. Materials and methods: Data on patient—spouse couples came from three studies of patients with stroke (36 couples), mild dementia (92 couples) and Parkinson's disease (58 couples). The psychosocial burden was recorded by the 15—item Relatives' Stress Scale (RSS). A factor analysis of this instrument produced a one‐factor solution (CFI = 0.98) consisting of eight items with good face validity and acceptable reliability within each diagnostic group (Cronbach's alpha range 0.66–0.69). Covariates of this factor were identified using structural equation modeling (SEM) by regression on patient's age, gender, cognitive function (MMSE), activities of daily living (ADL) and depressive symptoms (MADRS). Results: Disorganization of household routines, difficulties with going away for holidays, restrictions on social life, and the disturbances of sleep were the most frequently reported problems in all three groups. According to the mean sumscore on the RSS, the perceived psychosocial burden was similar across the diagnostic groups. In the final SEM model, a lower cognitive function of the patient was associated with a higher psychosocial burden on the spouses of patients with stroke (β = −1.3, p = 0.01) and Parkinson's disease (β = −0.89, p < 0.01), while in the dementia group, only an insignificant trend was demonstrated. In the dementia group, a significantly higher burden was identified on female spouses (β = −0.56, p = 0.04). A heavier burden of care was also associated with depressive symptoms in the patients with Parkinson's disease. In neither group did the final model disclose any effect of ADL function on the spouse's psychosocial burden. Conclusion: Spouses caring for patients with dementia, stroke and Parkinson's disease perceive a similar type and level of psychosocial burden, independent of the disease. The cognitive functioning of the patient is a particularly important factor in this, especially when caring for patients with stroke or Parkinson's disease. Copyright © 2002 John Wiley & Sons, Ltd.</p></abstract><textClass xml:lang="en"><keywords scheme="keyword"><list><head>Keywords</head><item><term>carer burden</term></item><item><term>cognitive impairment</term></item><item><term>elderly</term></item><item><term>stroke</term></item><item><term>mild dementia</term></item><item><term>Parkinson's disease</term></item></list></keywords></textClass><textClass><keywords scheme="Journal Subject"><list><head>article category</head><item><term>Research Article</term></item></list></keywords></textClass></profileDesc><revisionDesc><change when="2001-02-01">Received</change><change when="2001-06-18">Registration</change><change when="2002-01">Published</change></revisionDesc></teiHeader></istex:fulltextTEI><json:item><original>false</original><mimetype>text/plain</mimetype><extension>txt</extension><uri>https://api.istex.fr/document/8407B908DC6A0BCC4A02698E87626388238E5A8E/fulltext/txt</uri></json:item></fulltext><metadata><istex:metadataXml wicri:clean="Wiley, elements deleted: body"><istex:xmlDeclaration>version="1.0" encoding="UTF-8" standalone="yes"</istex:xmlDeclaration><istex:document><component version="2.0" type="serialArticle" xml:lang="en"><header><publicationMeta level="product"><publisherInfo><publisherName>John Wiley & Sons, Ltd.</publisherName><publisherLoc>Chichester, UK</publisherLoc></publisherInfo><doi registered="yes">10.1002/(ISSN)1099-1166</doi><issn type="print">0885-6230</issn><issn type="electronic">1099-1166</issn><idGroup><id type="product" value="GPS"></id></idGroup><titleGroup><title type="main" xml:lang="en" sort="INTERNATIONAL JOURNAL OF GERIATRIC PSYCHIATRY">International Journal of Geriatric Psychiatry</title><title type="short">Int. 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The psychosocial burden was recorded by the 15—item Relatives' Stress Scale (RSS). A factor analysis of this instrument produced a one‐factor solution (CFI = 0.98) consisting of eight items with good face validity and acceptable reliability within each diagnostic group (Cronbach's alpha range 0.66–0.69). Covariates of this factor were identified using structural equation modeling (SEM) by regression on patient's age, gender, cognitive function (MMSE), activities of daily living (ADL) and depressive symptoms (MADRS).</p></section><section xml:id="abs1-3"><title type="main">Results</title><p>Disorganization of household routines, difficulties with going away for holidays, restrictions on social life, and the disturbances of sleep were the most frequently reported problems in all three groups. According to the mean sumscore on the RSS, the perceived psychosocial burden was similar across the diagnostic groups. In the final SEM model, a lower cognitive function of the patient was associated with a higher psychosocial burden on the spouses of patients with stroke (β = −1.3, <i>p</i> = 0.01) and Parkinson's disease (β = −0.89, <i>p</i> < 0.01), while in the dementia group, only an insignificant trend was demonstrated. In the dementia group, a significantly higher burden was identified on female spouses (β = −0.56, <i>p</i> = 0.04). A heavier burden of care was also associated with depressive symptoms in the patients with Parkinson's disease. In neither group did the final model disclose any effect of ADL function on the spouse's psychosocial burden.</p></section><section xml:id="abs1-4"><title type="main">Conclusion</title><p>Spouses caring for patients with dementia, stroke and Parkinson's disease perceive a similar type and level of psychosocial burden, independent of the disease. The cognitive functioning of the patient is a particularly important factor in this, especially when caring for patients with stroke or Parkinson's disease. Copyright © 2002 John Wiley & Sons, Ltd.</p></section></abstract></abstractGroup></contentMeta></header></component></istex:document></istex:metadataXml><mods version="3.6"><titleInfo lang="en"><title>The psychosocial burden on spouses of the elderly with stroke, dementia and Parkinson's disease</title></titleInfo><titleInfo type="abbreviated" lang="en"><title>FRAIL ELDERLY AND PSYCHOSOCIAL BURDEN ON SPOUSES</title></titleInfo><titleInfo type="alternative" contentType="CDATA" lang="en"><title>The psychosocial burden on spouses of the elderly with stroke, dementia and Parkinson's disease</title></titleInfo><name type="personal"><namePart type="given">Bente</namePart><namePart type="family">Thommessen</namePart><affiliation>Department of Geriatric Medicine, Ullevaal Hospital, Oslo, Norway</affiliation><description>Correspondence: Department of Geriatric Medicine, Ullevaal Hospital, 0407 Oslo, Norway.</description><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">Dag</namePart><namePart type="family">Aarsland</namePart><affiliation>Section of Geriatric Psychiatry, Rogaland Psychiatric Hospital, Stavanger, Norway</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">Anne</namePart><namePart type="family">Braekhus</namePart><affiliation>The Norwegian Centre for Dementia Research</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">Anne Rita</namePart><namePart type="family">Oksengaard</namePart><affiliation>Department of Geriatric Medicine, Ullevaal Hospital, Oslo, Norway</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">Knut</namePart><namePart type="family">Engedal</namePart><affiliation>The Norwegian Centre for Dementia Research</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">Knut</namePart><namePart type="family">Laake</namePart><affiliation>Department of Geriatric Medicine, Ullevaal Hospital, Oslo, Norway</affiliation><role><roleTerm type="text">author</roleTerm></role></name><typeOfResource>text</typeOfResource><genre type="article" displayLabel="article"></genre><originInfo><publisher>John Wiley & Sons, Ltd.</publisher><place><placeTerm type="text">Chichester, UK</placeTerm></place><dateIssued encoding="w3cdtf">2002-01</dateIssued><dateCaptured encoding="w3cdtf">2001-02-01</dateCaptured><dateValid encoding="w3cdtf">2001-06-18</dateValid><copyrightDate encoding="w3cdtf">2002</copyrightDate></originInfo><language><languageTerm type="code" authority="rfc3066">en</languageTerm><languageTerm type="code" authority="iso639-2b">eng</languageTerm></language><physicalDescription><internetMediaType>text/html</internetMediaType><extent unit="tables">4</extent><extent unit="references">49</extent></physicalDescription><abstract lang="en">Objective: To characterize the psychosocial burden on spouses living with the elderly suffering from mild dementia, stroke and Parkinson's disease, and to identify patient characteristics associated with it. Materials and methods: Data on patient—spouse couples came from three studies of patients with stroke (36 couples), mild dementia (92 couples) and Parkinson's disease (58 couples). The psychosocial burden was recorded by the 15—item Relatives' Stress Scale (RSS). A factor analysis of this instrument produced a one‐factor solution (CFI = 0.98) consisting of eight items with good face validity and acceptable reliability within each diagnostic group (Cronbach's alpha range 0.66–0.69). Covariates of this factor were identified using structural equation modeling (SEM) by regression on patient's age, gender, cognitive function (MMSE), activities of daily living (ADL) and depressive symptoms (MADRS). Results: Disorganization of household routines, difficulties with going away for holidays, restrictions on social life, and the disturbances of sleep were the most frequently reported problems in all three groups. According to the mean sumscore on the RSS, the perceived psychosocial burden was similar across the diagnostic groups. In the final SEM model, a lower cognitive function of the patient was associated with a higher psychosocial burden on the spouses of patients with stroke (β = −1.3, p = 0.01) and Parkinson's disease (β = −0.89, p < 0.01), while in the dementia group, only an insignificant trend was demonstrated. In the dementia group, a significantly higher burden was identified on female spouses (β = −0.56, p = 0.04). A heavier burden of care was also associated with depressive symptoms in the patients with Parkinson's disease. In neither group did the final model disclose any effect of ADL function on the spouse's psychosocial burden. Conclusion: Spouses caring for patients with dementia, stroke and Parkinson's disease perceive a similar type and level of psychosocial burden, independent of the disease. The cognitive functioning of the patient is a particularly important factor in this, especially when caring for patients with stroke or Parkinson's disease. Copyright © 2002 John Wiley & Sons, Ltd.</abstract><subject lang="en"><genre>Keywords</genre><topic>carer burden</topic><topic>cognitive impairment</topic><topic>elderly</topic><topic>stroke</topic><topic>mild dementia</topic><topic>Parkinson's disease</topic></subject><relatedItem type="host"><titleInfo><title>International Journal of Geriatric Psychiatry</title></titleInfo><titleInfo type="abbreviated"><title>Int. J. Geriat. Psychiatry</title></titleInfo><genre type="Journal">journal</genre><subject><genre>article category</genre><topic>Research Article</topic></subject><identifier type="ISSN">0885-6230</identifier><identifier type="eISSN">1099-1166</identifier><identifier type="DOI">10.1002/(ISSN)1099-1166</identifier><identifier type="PublisherID">GPS</identifier><part><date>2002</date><detail type="volume"><caption>vol.</caption><number>17</number></detail><detail type="issue"><caption>no.</caption><number>1</number></detail><extent unit="pages"><start>78</start><end>84</end><total>7</total></extent></part></relatedItem><identifier type="istex">8407B908DC6A0BCC4A02698E87626388238E5A8E</identifier><identifier type="DOI">10.1002/gps.524</identifier><identifier type="ArticleID">GPS524</identifier><accessCondition type="use and reproduction" contentType="copyright">Copyright © 2002 John Wiley & Sons, Ltd.</accessCondition><recordInfo><recordContentSource>WILEY</recordContentSource><recordOrigin>John Wiley & Sons, Ltd.</recordOrigin></recordInfo></mods></metadata><serie></serie></istex></record>Pour manipuler ce document sous Unix (Dilib)
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